Owen is being quite a patient little guy as we try to figure out what is going on with him. In case you are wondering what is going on with him: he has had a couple bouts of pneumonia, gets crazy wheezy when he's sick and has been vomiting almost daily for the last three months (started at 9 months). He slowly began eating less, refused almost all foods and gagged on those he didn't, so on May 10th a NG tube was inserted to administer feeds. This ensures he gets adequate calories each day. He is now gets all nutrition through the tube- which now consists of six 4.5 ounce feeds a day of formula chased with water to flush the tube. We are not sure how long we will be doing this for, but we are at week seven right now.
The process of getting a diagnosis is far more drawn out than imagined. Watching all of those House episodes got me thinking it would be fairly quick. Not so.
Here are the list of tests and results as of now:
May 10: NG tube inserted
May 16: ENT visit- airway films showed no abnormalities in the laryngeal region
May 18: Upper GI and Video Swallow Study showed some aspiration into the airways, but we don't know the cause. GI Dr. Yazigi asked that we do all feeds by tube since he may be vomiting to protect his airways.
May 18: Sweat Chloride Test to check for Cystic Fibrosis was a 5, therefore negative for CF and so thankful!
May 24: Echo and Ekg to monitor his heart one year post-surgery and everything looked GREAT! yay!
June 21: Triple Scope Procedure followed by an Impedance Probe- 1)Upper Endoscopy 2)Bronchoscopy 3)MLB - Microscopic Laryngeal and Bronchioscope. Biopsies were done to check for things like Celiac Disease and Eosinophilic Esophagitis (EE). Owen was given anesthesia for this and stayed overnight as the Impedance Probe monitored acid levels in his esophagus and reflux like symptoms. We are waiting on most of the results from these but did find out a few things. He has super small airways: his are 3.0 mm, a newborn's are 3.5 mm and his should be 4.0 mm. His left bronchial tube is a narrow passage too. Both of these issues cause wheezing and excess mucus when he gets ill. The current remedy for these issues is to allow Owen to grow some more and hopefully they will grow too! So far we don't have any answers in regards to the vomiting.