Tuesday, June 28, 2011

12 months = 1 year!!!

A year. Wow.  I feel as if I have wished my pregnancy and Owen's first year away.  I was always looking forward to the next doctor's appointment to make sure everything was okay or to determine what was wrong.   My hope for the next year is that I spend each day worrying less and focusing more on making the time last a little longer!  Good luck, right?

We have yet to throw Owen's big first birthday bash (not that we were planning on a huge party).  We have not been given the go ahead to allow him to eat foods, so no cake.  So far he hasn't seemed to miss it :)  When he is cleared, we will give him a cake to dig into for photos for all of his fans out there to see.

Owen spent the weeks leading up to his birthday with both sides of his family.  We went to Outer Banks, NC with the Leuzinger side and Siesta Key, FL with the Dursch side.  The trips were wonderful.  Owen was a great traveller, sleeping most of the way.  He took his first swim in the pool and the gulf and loved the warm water.  He tasted the sand a few times and decided it was delicious.  His favorite part of the  two weeks was spending time with his awesome grandparents, aunts, uncles and cousins.  We can't wait until the next family trips.

Cool things the O-dog is doing:

-GROWING even more!
-weighing 17 lb 3 oz and is 28.25 in tall
-pulling up to stand at the couch & play tables
-'cruising' on the couch and ottoman
-picking up things off the floor & eat them (keeping mommy on her toes)
-making some of the motions during songs
-2 more teeth are busting through
-playing by himself for extended periods of time
-being curious about everything
-making funny faces, like shriveling up his nose
-finding things he shouldn't be playing with
-pulling out his toy box and digging in

At Owen's one year appointment he got 4 shots and had blood drawn.  In addition to the typical one year CBC panel, Owen is being tested for food and environmental allergies.  The Dr. said these can be determined with a blood sample now.  Nice!  It will be interesting to see if this results in any allergies.

Happy first birthday Owen!  Mommy & Daddy love you!

Pictures coming soon.

Sunday, June 26, 2011

11 months

The 11 month mark came and went very quickly.  School was winding down for me.  I had taken off the last several weeks of work (school) to care for Owen as he began his tube feeding.  I felt very overwhelmed for sometime with the vomiting and tube, but things are calming down a bit.  I made a big decision to take a year of leave from my position at work to be at home with Owen while we get all of this craziness straightened out.  I am happy with my decision and think it will help Owen get better faster :)

Here are all of the cool things Owen is doing:

-GROWING!
-weighs 16 lbs. 0 oz. and is 28 in. tall!!! (almost a 2 lb and 2 in increase)
-standing and trying to walk when his hands are held
-making more sounds, associating them with things, like dad and the dogs
-rolling a ball better
-running in his orbiting exersaucer - it is hilarious!
-scooting on his belly and dusting the floor like a maniac
-popping up to sitting with ease
-drumming on everything
-still napping 2 times a day

Pictures to come!

Friday, June 24, 2011

Testing... 1, 2, 3, 4

Owen is being quite a patient little guy as we try to figure out what is going on with him.  In case you are wondering what is going on with him: he has had a couple bouts of pneumonia, gets crazy wheezy when he's sick and has been vomiting almost daily for the last three months (started at 9 months).  He slowly began eating less, refused almost all foods and gagged on those he didn't, so on May 10th a NG tube was inserted to administer feeds.  This ensures he gets adequate calories each day.  He is now gets all nutrition through the tube- which now consists of six 4.5 ounce feeds a day of formula chased with water to flush the tube.  We are not sure how long we will be doing this for, but we are at week seven right now.

The process of getting a diagnosis is far more drawn out than imagined.  Watching all of those House episodes got me thinking it would be fairly quick.  Not so.


Here are the list of tests and results as of now:

May 10: NG tube inserted
May 16: ENT visit- airway films showed no abnormalities in the laryngeal region
May 18: Upper GI and Video Swallow Study showed some aspiration into the airways, but we don't know the cause.  GI Dr. Yazigi asked that we do all feeds by tube since he may be vomiting to protect his airways.
May 18: Sweat Chloride Test to check for Cystic Fibrosis was a 5, therefore negative for CF and so thankful!
May 24: Echo and Ekg to monitor his heart one year post-surgery and everything looked GREAT! yay!
June 21: Triple Scope Procedure followed by an Impedance Probe- 1)Upper Endoscopy 2)Bronchoscopy 3)MLB - Microscopic Laryngeal and Bronchioscope.  Biopsies were done to check for things like Celiac Disease and Eosinophilic Esophagitis (EE).  Owen was given anesthesia for this and stayed overnight as the Impedance Probe monitored acid levels in his esophagus and reflux like symptoms.  We are waiting on most of the results from these but did find out a few things.  He has super small airways: his are 3.0 mm, a newborn's are 3.5 mm and his should be 4.0 mm.  His left bronchial tube is a narrow passage too.  Both of these issues cause wheezing and excess mucus when he gets ill.  The current remedy for these issues is to allow Owen to grow some more and hopefully they will grow too!  So far we don't have any answers in regards to the vomiting.