Wednesday, October 19, 2011

Young's Dairy Visit

Scared to death by the goats 
They are friends now

Fall Pictures :)

10 teeth and counting!

What a cutie :)

There's his nose!

Smile :)

Best Buddies

Wednesday, October 5, 2011

15 months

Owen pulled his tube out in September :)  He was eating pretty well and is beginning to really enjoy food.  He is on an appetite stimulant - Periactin- to help his with his hunger.  I feel this has really helped him. The dietician also told me to start giving him more high calorie foods like oatmeal cream pies, nutella, cakes, cookies, etc.  I struggled with this at first, mainly because I want him to eat healthy foods, but also because if the foods are in the house, Andy and I eat them :(  When we weighed Owen in 2 weeks after pulling the tube, he had gained almost a pound!  He now weighs about 18 1/2 pounds.

Other exciting news:
-Owen got his first pair of shoes
-he took his FIRST SOLO STEPS at 15.5 months!!!
-he says clock, mom, daddy, yes, shoes, bath and hat
-does barrel rolls across the floor
-gives kisses
-can stack a tower 8 blocks tall!
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Thursday, August 25, 2011

14 months- so much fun!

Things Owen can do:
-push a chair, plastic tub and ride on toy as he tries to walk
-stack a block on top of another
-point to airplanes when he hears them
-cry when he is frustrated
-bang toys on doors and cabinets
-open & close cabinets
-climb down from the couch
-climb up stairs supervised
-sign all done when meal is over
-move toothbrush around in his mouth, but still far from 'brushing his teeth'
-point to body parts, newest being his belly button :)
-play peek a boo
-push shapes through a shape sorter, when mommy lines it up correctly
-dip spoon in bowl and feed self at times

Thursday, August 18, 2011

Brighter days are upon us :)

Someone has been slacking at posting lately... so Owen is trying to type this for me.  Owen is almost 14 months old and perfectly capable of typing his own posts now!

After all of the tests Owen went through, the doctors have concluded that nothing is wrong.  It was hard to hear this at first, when clearly something was wrong.  Vomiting every day is not normal.

This is the explanation we were given and it makes sense, so we are content as long as he gets better:  Owen had bronchiolitis & pneumonia twice (6 mo & 9 mo), causing excess mucus to build up in his airways.  In the last update I wrote about how his airways are small- called subglottic stenosis- and his left bronchus is narrowed which causes more problems when he gets sick.  The excess mucus would cause him to vomit.  This caused irritation in his esophagus bringing on reflux like episodes.  Owen began to lose trust in food because he became sick when he ate it.  The GI doctor said this just became a vicious cycle for Owen since the vomiting made the reflux worse and the reflux attributed to the vomiting.  The doctors increased his Prevacid dosage to 15 mg 2x per day and this has really helped.  Owen has not vomited since July 14th!!! I can't believe he has gone more than a month.  We are so happy about this :)

Now that the food isn't making Owen ill, he is regaining his trust again.  We met with the Cincy Children's feeding team for an evaluation on July 28th.  All of Owen's oral motor skills were up to par- great news!  He gets a little tired when eating finger foods, so we are doing more calorie dense purees while he eats the finger foods to help with his swallowing.  We learned all kinds of cool tricks from the team.  Like when we are working on drinking from an open cup use a shorter cup with yogurt smoothie to slow down the flow.  Gradually add more milk to thin the consistency.  So cool!  We are cheering when Owen takes good bites and drinks and trying our best to ignore his cup throwing, spitting milk back out, and flinging of food... such a hard task for mom and dad :)  We are working on an 'all done' sign with him so he can inform us he is finished before he begins to make a huge mess.

We have switched our 6 feeds to 3 feeds during the day- just breakfast, lunch and dinner- to help Owen begin to feel hunger.  This plan has been in effect for about 3 weeks.  He now takes about 3 ounces of Pediasure orally and eats around 2 - 5 oz of various purees during each meal.  This is amazing progress!  Just about two months ago he was eating nothing!  We still tube feed 3 additional ounces of Pediasure during each meal to supplement his caloric needs.  Owen hasn't been gaining much weight, holding steady around 17 1/2 pounds.   The doctors said he may even lose some weight while we are working on building his appetite.  We go back for a check up on his progress on Sept. 9th.  We are hoping by this time he will be doing well enough to remove the NG tube :)

Hope everyone is well!  One of these days I will get new pics posted...

Tuesday, June 28, 2011

12 months = 1 year!!!

A year. Wow.  I feel as if I have wished my pregnancy and Owen's first year away.  I was always looking forward to the next doctor's appointment to make sure everything was okay or to determine what was wrong.   My hope for the next year is that I spend each day worrying less and focusing more on making the time last a little longer!  Good luck, right?

We have yet to throw Owen's big first birthday bash (not that we were planning on a huge party).  We have not been given the go ahead to allow him to eat foods, so no cake.  So far he hasn't seemed to miss it :)  When he is cleared, we will give him a cake to dig into for photos for all of his fans out there to see.

Owen spent the weeks leading up to his birthday with both sides of his family.  We went to Outer Banks, NC with the Leuzinger side and Siesta Key, FL with the Dursch side.  The trips were wonderful.  Owen was a great traveller, sleeping most of the way.  He took his first swim in the pool and the gulf and loved the warm water.  He tasted the sand a few times and decided it was delicious.  His favorite part of the  two weeks was spending time with his awesome grandparents, aunts, uncles and cousins.  We can't wait until the next family trips.

Cool things the O-dog is doing:

-GROWING even more!
-weighing 17 lb 3 oz and is 28.25 in tall
-pulling up to stand at the couch & play tables
-'cruising' on the couch and ottoman
-picking up things off the floor & eat them (keeping mommy on her toes)
-making some of the motions during songs
-2 more teeth are busting through
-playing by himself for extended periods of time
-being curious about everything
-making funny faces, like shriveling up his nose
-finding things he shouldn't be playing with
-pulling out his toy box and digging in

At Owen's one year appointment he got 4 shots and had blood drawn.  In addition to the typical one year CBC panel, Owen is being tested for food and environmental allergies.  The Dr. said these can be determined with a blood sample now.  Nice!  It will be interesting to see if this results in any allergies.

Happy first birthday Owen!  Mommy & Daddy love you!

Pictures coming soon.

Sunday, June 26, 2011

11 months

The 11 month mark came and went very quickly.  School was winding down for me.  I had taken off the last several weeks of work (school) to care for Owen as he began his tube feeding.  I felt very overwhelmed for sometime with the vomiting and tube, but things are calming down a bit.  I made a big decision to take a year of leave from my position at work to be at home with Owen while we get all of this craziness straightened out.  I am happy with my decision and think it will help Owen get better faster :)

Here are all of the cool things Owen is doing:

-weighs 16 lbs. 0 oz. and is 28 in. tall!!! (almost a 2 lb and 2 in increase)
-standing and trying to walk when his hands are held
-making more sounds, associating them with things, like dad and the dogs
-rolling a ball better
-running in his orbiting exersaucer - it is hilarious!
-scooting on his belly and dusting the floor like a maniac
-popping up to sitting with ease
-drumming on everything
-still napping 2 times a day

Pictures to come!

Friday, June 24, 2011

Testing... 1, 2, 3, 4

Owen is being quite a patient little guy as we try to figure out what is going on with him.  In case you are wondering what is going on with him: he has had a couple bouts of pneumonia, gets crazy wheezy when he's sick and has been vomiting almost daily for the last three months (started at 9 months).  He slowly began eating less, refused almost all foods and gagged on those he didn't, so on May 10th a NG tube was inserted to administer feeds.  This ensures he gets adequate calories each day.  He is now gets all nutrition through the tube- which now consists of six 4.5 ounce feeds a day of formula chased with water to flush the tube.  We are not sure how long we will be doing this for, but we are at week seven right now.

The process of getting a diagnosis is far more drawn out than imagined.  Watching all of those House episodes got me thinking it would be fairly quick.  Not so.

Here are the list of tests and results as of now:

May 10: NG tube inserted
May 16: ENT visit- airway films showed no abnormalities in the laryngeal region
May 18: Upper GI and Video Swallow Study showed some aspiration into the airways, but we don't know the cause.  GI Dr. Yazigi asked that we do all feeds by tube since he may be vomiting to protect his airways.
May 18: Sweat Chloride Test to check for Cystic Fibrosis was a 5, therefore negative for CF and so thankful!
May 24: Echo and Ekg to monitor his heart one year post-surgery and everything looked GREAT! yay!
June 21: Triple Scope Procedure followed by an Impedance Probe- 1)Upper Endoscopy 2)Bronchoscopy 3)MLB - Microscopic Laryngeal and Bronchioscope.  Biopsies were done to check for things like Celiac Disease and Eosinophilic Esophagitis (EE).  Owen was given anesthesia for this and stayed overnight as the Impedance Probe monitored acid levels in his esophagus and reflux like symptoms.  We are waiting on most of the results from these but did find out a few things.  He has super small airways: his are 3.0 mm, a newborn's are 3.5 mm and his should be 4.0 mm.  His left bronchial tube is a narrow passage too.  Both of these issues cause wheezing and excess mucus when he gets ill.  The current remedy for these issues is to allow Owen to grow some more and hopefully they will grow too!  So far we don't have any answers in regards to the vomiting.

Saturday, May 14, 2011

10 months- a lot going on...

So actually we are almost at 11 months (we took this pic at 10 months 3 weeks- sorry Owen). A couple new changes you may notice- 1) he got a hair cut! 2) the tube is back :(  - see other posts

Owen has made some advancements in the last few weeks.  It is amazing how he can wake up and have a new trick mastered.  I think he practices at night.

Things Owen is doing:
-scooting across the floor on his belly, like the army crawl
-sitting up from laying down (just did this for the first time yesterday)
-clapping his hands
-giving high five and showing how big he is
-enjoying peek a boo
-dancing to music (he has picked up some of mom and dad's moves)
-playing the drop game and trying to get mom to play too!
-climbing up mom to get to standing
-learning to use a sippy cup a little better
-rolling a ball on the floor
-knocks down towers and pops bubbles
-14 pounds 4 ounces and 26.5 inches

Owen had a great Easter and Mother's Day.  He found his first morel mushroom on Easter at Grandma and Grandpa Dursch's woods.  Here is a pic with daddy:

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Friday, May 13, 2011

The Story of the Tube

If you remember, Owen was sick in the 9 month post.  They said he had pneumonia again.  He still doesn't sound any better.  He continues to vomit and has lost his appetite.  At 10 months he was 14 pounds 4 oz and 26.5 inches.  We met with a GI specialist to look into the throwing up thing.  They classified him as failure to thrive, which just means he has fallen below the growth curve he set for himself.  We met with another dietician that put him on a high calorie diet- adding butter, cream and olive oil to meals, and making the formula 32 calories per oz. instead of the standard 20.  He continued to vomit and began refusing to eat- showing us by clamping his mouth shut and turning his head.  We took him out of daycare on May 6th with the hope of keeping him healthy. 

After two weeks of the giving a thumbs down to the new diet, they decided to put an NG tube back in for the feeds he does not take.  We are back to feeding him 7 times a day with four ounces at each sitting.  (This would give him 28 ounces a day- he was taking an average of 12 ounces per day.)  Whatever he doesn't take by bottle goes in the tube.  The tube has been a bit more challenging this time as he likes to move around and squirm.  We have become wiser with our strategy as the days pass.  We have found the exersaucer or bouncy seat to be wonderful inventions for the feeds.  They keep Owen pretty distracted while we are messing around with the tube.  The first few days it took two of us to execute them, but now I think we have it all under control (until he throws up- then things get a little crazy again).  We have little plastic storage containers all over the house, so we are always steps away from catching the mess before it hits the floor.  It is quite the talent!

The doctors would like the tube to stay in for at least a few weeks.  The hope is that he will become healthier as he puts on weight and gets the adequate amount of calories.  Then, he will begin to eat on his own again with an appetite like his father.

Owen does pretty well with leaving the tube alone.  He has managed to only pull it out one time so far.  Andy had to put it back in and did a fantastic job!  (So glad it was him and not me!)  Wish us luck with keeping Owen entertained enough to not mess with his tube :)  We'll keep you posted on the progress.

First Haircut!

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Sunday, April 10, 2011

9 months! Spring!

Can you believe it? Owen is 9 months old now. He has been pretty funny lately when he is not sick. Making new noises and giggling :) He has been sick the last couple weeks with broncholitis (again- Mr. Wheezy), vomiting and an acute ear infection. (We had to cancel our Spring Break trip to Chicago to see the cousins...) Hopefully the warmer weather will eradicate all sicknesses from his body. Owen has 2 more new teeth on the top middle- making a total of 4 teeth. I didn't notice them until he began to grind them one day, what an awful sound! In his 9 month picture he is laughing at the dogs, Monty and Mayo. He really loves them right now! He thinks the coolest thing ever is when Mayo chases the stick.

New things this month:
-new teeth
-not liking to nurse at all
-standing at the ottoman
-making noises while I read Brown Bear to him- I guess they are animal sounds
-still loves to be outside
-turns things over to drum on them
-getting pretty good with his feet, grabs the ball to bring to his hands
-eating finger foods, like cheerios, green beans, cheese

At Owen's 9 month appointment, he weighed 13 pounds 15 ounces and is 26 1/2" long. He is doing pretty well on the height, but the weight is below the 3rd percentile. We went to see a dietician to help put on some pounds. We now have a plan to sneak in extra calories at every meal and are trying to add more protein every day. We haven't been too successful since we saw her, because he has been throwing up once a day since then. He hasn't gained any weight unfortuneately.  We will keep you posted.  Happy Spring!

New pictures in the album!

Thursday, March 10, 2011

Cute Sweater from Mary :)

Thanks Mary!  It is so pretty!  Matches his eyes :)

8 months... such a big boy!

Owen has been doing great!  No sicknesses for a few weeks other than a little cold.  He is growing a lot.  26.5 inches and 14.8 pounds.  A two pound gain in the last month!  Whoo hoo!  Owen eats about 1/2 cup of food at each meal now.  New foods we have been trying: avacado, mango, blueberry yogurt, egg, chicken, diced peaches, strawberries.  He seems to love anything we give him :)  Good news for us!  I hope he keeps it up.  He doesn't want much milk from the bottle now so we are thinking of trying the sippy cup.  Right now he isn't strong enough to lift it up to his mouth or coordinated enough to get it there.  Maybe another month will bring this new skill.

Things Owen can do now:
-reach for things
-say da-da
-play with finger foods but not feed himself consistenly
-put weight on his legs for awhile when we hold him
-loves patty cake and itsy bitsy spider
-turn over from back to belly and turn over to get things
-shake his head back and forth like he is saying 'no'

Wednesday, February 2, 2011

7 Months Old!

Owen is doing well.  Feeling much better and trying to stay away from any illnesses being passed around day care.  He is a lot of fun right now.  We have had a few more snow days recently so I have been able to hang out with him some more :) We started eating foods at exactly 6 months and took a break during the hospital stay, because he didn't want to eat anything at all.  Owen has come a long way with his technique.  The first 2 weeks almost everything came back out.  He has made some awesome faces too!  None caught on camera though :( I am still making his food, which really isn't too bad when you have the hand blender to quickly puree things.  So far I am not a fan of the hand crank food mill... the hand blender is the way to go.

Things he has tried so far: (not that any of you are interested, but it serves as a record for me.)
Cereals: 1. Organic Brown Rice 2. Oatmeal 3. Barley
Veggies: 1. Sweet Potatoes 2. Carrots 3. Butternut Squash 4. Green Beans 5. Peas
Fruits: 1. Bananas 2. Apples 3. Pears

What is Owen doing now?
-Sitting up!
-Has 2 bottom front teeth coming in!
-Taking about 2 naps a day, sometimes 3- if not he goes to bed at 6-6:30ish
-Eating food very well (about a 1/4 cup for lunch and dinner times)
-Is not happy when a toy is out of reach
-Reaches up to be held
-Saying Blah Blah Blah Blah, no dada or mama yet :(
-Sleeping from about 7:30p to 6a
-Having big boy BMs more frequently now- daddy is a little grossed out!
-Nursing or taking a bottle about every 4-5 hours now (4-5 ounces at each)
-Length 25.5 inches, Weight 12.8 pounds

New pics in the album :)

Monday, January 24, 2011

We're Home!

Owen was able to come home on Friday.  He wasn't eating a ton, but we thought coming home would help that.  It did.  He ate like a champ on Saturday. We even tried some solids, which he took down beautifully.  The next morning he woke up next to all of this wonderful food on the bed beside him.  That was a first for all of us... kinda gross. He had trouble eating that morning, but eventually came around again.  We are headed to the doctor today to make sure all is still okay.

While we were in the hospital, Owen turned 7 months!  He weighs a little over 13 pounds now and seems to be longer, but we don't have an accurate measure on this.  We will soon post a 7 month picture and a summary of what has been going on.

Thank you for thinking of Mr. Owen over the last week.  Hope you are all well :)

Wednesday, January 19, 2011

Sicko... poor Mr. Owen :(

Owen has gotten just about every sickness going around day care so far this winter.  This weekend he started out with a cold, sounded a bit raspy and wasn't eating very well.  When he woke up on Sunday morning he sounded terrible- deep chest cough, working really hard to breathe, wheezy, lethargic, less wet diapers, not eating much and not being Mr. Smiley.  So we took him to the pediatrician on Monday. They gave him a breathing treatment- albuterol because his Oxygen saturation was low and it didn't help, so they sent us to the hospital.  They checked him out and ran some tests- determined he has RSV (the cold virus).  This led to
bronchiolitis- swelling and mucus buildup in the smallest air passages in the lungs.  He also developed pneumonia from this.  So, we have been at Cincinnati Children's since Monday. (We have been running into a few familiar faces.)

They are treating him with aggressive suctioning in the nasal passages and throat- he hates the ladies in the yellow gowns and shudders at the word "suction".  Although, he has done very well for them during the procedure- he holds his head very still while he is screaming...  Also, they have been putting him on and off Oxygen.  His blood oxygen saturation levels have been running a little lower than normal.  He has been off for most of the day.  He was on IV fluids to keep hydrated, was eating better, so they took him off, but now he is back on because he doesn't want to eat.  He has been vomiting a little bit to try to get the mucus out.  Poor guy looks so sad.  It is so hard to watch his little body in such rough shape.  We just want happy Owen back :)  He is resting right now.  Hopefully he will be on the mend soon.  They say days 4 and 5 are the worst and I think today is day 5.  He is sounding a little better.

Mom and dad have both been with Owen the whole time.  Glad our jobs allow us to be with him when he needs us most.  Hope everyone is well!  Stay healthy and wash your hands!